Showing posts with label deaf. Show all posts
Showing posts with label deaf. Show all posts

Wednesday, October 5, 2016

Unspoken Social Rules

Growing up, I really struggled to relate to people and follow the social rules. I know I came off as a know-it-all, or a teacher's pet, (and still do) but I could not figure out why people thought that of me.

This week, however, someone I deeply love and respect came and told me how something (actually several things) I did came across, and it shocked me. How she viewed what I did was not at all done with the intentions that she saw! And the problem wasn't with her! She was merely saying in a kinder way what everyone else had unkindly said in the past about me. And I realized something;

The social rules I operate under are not the same rules most people operate under. So what I do with good intentions comes across completely different to everyone else.


So here are some of the social rules that I live by, that look so strange to everyone else. And some of these rules can be applied to the Deaf community, and some might not.

1. If you are speaking to me and I do not turn around and face you, I either did not hear you or I am purposefully and disrespectfully ignoring you.
  I have never had perfect hearing, but have always had to face someone to speak with them in order to clearly understand what they have said. Because of that, if I am not facing you, I am either not hearing you, or am angry with you and am insulting you. To not face you when you speak is to insult you, because it means I am not even trying to understand you.
Vice versa, if you do not look at me when I speak to you, to me it is the height of disrespect. Because it is such an insult for me not to look at you, for you not to look at me when I speak, it is just as insulting to me. And while you don't mean to be disrespectful, because of how I communicate, to me it is one of the most insulting things you can do. And rest assured, if I turn away from you and won't look at your face no matter what you say, I'm purposefully shutting you out, and can offer you no greater insult. The only exception (AND PLEASE REMEMBER THIS) is if I don't hear you, or have told you to wait a minute until I can look at you.

2. If I am looking you in the eyes, I am not challenging you, but respecting you. However, this is also not flirting with you.
   
I have come to realize that most hearing people do not like looking people in the eyes for the entire duration of a conversation. To do so appears to be challenging someone or flirting with them. I have had my gaze misinterpreted both ways.

     The truth, however, is very different. I look you in the eyes so that I can both lip read you, and catch any minute facial expressions that I need in order to fully understand what you are saying. This is a requirement for me to hold a conversation with you in any environment that is not utterly silent. Your facial expressions help me catch the words or meanings that I cannot hear. And in return, I need your eyes and face to be facing mine, so that I can use those expressions and the shape of your mouth to understand you.

3. If you ask a question and I have an answer, I must answer it or I am not respecting you. 
     This one gets me into trouble in groups. However, let me explain this social rule for me; I struggle to understand things because I do not hear well. I often miss out on basic information that you simply overhear in other people's conversations. When I ask a question, I ask because I want to know, and if you don't answer the question, you either do not know, or are refusing to tell me. Please understand, much of what I know I have had to search out myself. Hearing people simply overhear information and absorb it without even knowing it. For me, I have to search it out, research it, or ask questions. For me, and especially for the Deaf community, information is important. There's a rule in the Deaf community that if you know something that could help someone else, you ARE REQUIRED to tell, or else you are held responsible for any harm that happens to someone else BECAUSE you withheld information. Even not growing up in the Deaf community, I grew up with the mentality that if a question is asked, it must be answered, and if I do not answer it, I am ignoring the person asking. And that is exceedingly rude.
     In the context of a group, if a speaker asks a question, this social rule that I live by causes me to answer any question that I know the answer to in order to show the speaker that I am engaged, listening, and I care about the subject matter. However, to hearing people, and even to DEAF, honestly, this can come across as being a know-it-all or bragging, instead of a sign of respect.

4. Asking questions in a medium or large group shows that we are engaged, and care about what you have to say.     This generally does not apply to situations where it is known that you do not speak. For example; a formal church service, a formal banquet, anything formal, really. However, in large lectures, I have asked questions. And I don't really understand the hearing stigma against it, but for me, it means that I didn't fully understand what the speaker said, and in order to respect him, I ask him to clarify. The reasoning behind it is that what he says is important, and I am making the effort to understand what he is trying to say. I value his opinion and want to understand it fully. It also shows that I am engaged, and is also to encourage him that he's not talking to a half asleep group.
     With this in mind, the mindset of being engaged and caring about what he is saying, I'm not entirely sure why hearing people hate it when people ask questions in large groups, or even look down on it. I still can't figure it out, but somehow it comes across as selfish or self-focused, instead of being engaged and wanting to have a full understanding of what we're doing.

5. I nod, say "yes," and "ah," or use other relevant interjections a lot in conversations.      As with everything else before, this is based on the concept of being engaged in a conversation. I'm not trying to interrupt, or annoy you. I'm telling you that I'm listening. I reply to let you know that I am still actively listening.

All of these things stem from the fact that I have to make an effort to listen to anyone. Yes, listening is a skill, but I'm not just battling not listening. In order to even hear you, I have to make a concentrated effort. Listening, for me, is exhausting work. Therefore, the highest form of respect I can show you is that I am listening, that I am engaged, and that I am actively trying to understand you in the way you wish to be understood. And conversely, my greatest insult  I can offer is to give you no room to speak at all, or to completely ignore you when you speak and make no reply.  And what is passing off as trying to be a know-it-all by replying to everything is actually a form of respect from me, because I am making the highest effort to understand you, and reply to you. Because there is nothing more exhausting for me to do than to communicate.



Friday, April 15, 2016

I forgot I'm still an introvert

So, apparently, despite the fact that I love hanging out with Deaf, I'm still an introvert. Meaning, I still need to have at least one day a week where I can stay home and be left alone. I've been booked every day for social events for the past two weeks, and today was no different. I was planning on going to an event tonight, and I was just depressed, but I didn't know why. I was half asleep all day, I kept wanting to go back to bed, and I basically ended up in bed curled up in my blankets, looking like a burrito roll of depressed misery. And I could not figure out why. Then I decided I wouldn't go to the event. I'd take a full day to stay home. And at that moment, I cheered up. I got up, loaded the dishwasher, cleared the kitchen counters, swept and mopped the kitchen, swept and mopped the bathroom, and started folding laundry. All of that within half an hour. Yes, I'm still an introvert. I still need a day where I am left alone. Doesn't matter if I am with Deaf or hearing; I still need at least one day a week where I don't have to really talk with anyone. Don't get me wrong, I love people. I love my friends, doesn't matter if they're Deaf or hearing. I I just sometimes need to be alone. If I don't get my free day, I become depressed and EXTREMELY CRANKY.



Saturday, December 26, 2015

Open letter to hearing friends and family

Dear family and friends,
            This last Christmas, I'm sure you all noticed me and Mum signing. And some of you told me to stop signing. Some of you seemed quite frustrated with me, and what I was missing, or my odd behavior. There is something you need to know:
            I am going Deaf. In the past, I could pass off as hearing as well as you. I can no longer do that. I am completely Deaf on my left side. Nothing gets through that side. My hearing aid on that side doesn't even help that ear, but only acts as a radio to send the sound over to my right side. And now, my right side is also hard of hearing.
            I am beyond tired of pretending everything is okay when I walk into a family or public event. And I will never stop signing. I am going Deaf, and when I become fully Deaf that will be my main mode of communication. It makes you uncomfortable? Put yourself in my shoes; missing over half of what you say and being left out of everything is misery. It turns every family and social event into a nightmare.
            When I sign, the world opens up to me. I can understand, I can communicate, I can connect. I am no longer cut off from the people I love. When you tell me not to sign, you place me in a cage, where the words I can't understand make the bars of that cage. Only random words are discernible from the myriad of sounds surrounding me. I can't leave without being rude, and yet you deny me the only way I have equal access to the conversation. You laugh, and I ask what happens, and you tell me that you'll tell me later, though we both know that that later will never come. You talk about plans and events, things that happened in your life, but I never know, because I can't hear you.
            And I can't take it any more. Your words fly around me, but mean nothing to me. I know I'm missing out, and it will only get worse as time goes by. I try to express myself in body language, because I'm trying to break out of the wordless sound I'm in, and you tell me to stop being so childish.
            How can I break free? You won't let me sign, you won't accept my body language that I use to express myself when words fail, and thus I am cut off from my own family and friends.
 Don't you love me enough to face a little discomfort so I can be in your world? Every day is discomfort for me. A fear of a stranger yelling at me because I don't understand; nodding and smiling when people are talking because everyone else is, though I have no idea what they're saying; seeing people laugh, and knowing I miss the punch line and never feeling the sweet comradeship there is in laughing together; having a store clerk ask me a question, and having to stare at her with an uncomprehending smile without a clue of what she's saying. Can't you take the time for a few hours to face discomfort so I can know what is going on in your lives? When I ask mum to interpret for me so I don't have to rely on my weakest sense, can't you realize that I ask because I care what you have to say? And when I can't hear at all, can't you realize that I sign because I don't want to be alone, and not because I don't want to exclude you? That I sign because your speech is excluding me, and I don't want to be alone any more than you do?
I come to events because I love you, though it takes all my effort to understand. If it were just me, I would stay home and read a book, or blast music that is loud enough for me to hear. Honestly, every event where I have to hear is exhaustion. Can't you love me back by trying to help me instead of hindering me? All you do is complain about what I'm doing. Is it really loving of you to pretend everything is ok and to make no effort to help me, but to hinder every attempt I make at trying to hear you? If you will not help me, then what can I do?

I can no longer pretend. I am going Deaf. I struggle to hear you. If you will not help me hear you, then I will stop trying to hear you, because if it is not important enough for you to help me understand, then it is no longer important enough for me to waste my energy on it. If I cannot sign, if you will not write out difficult words that you've said, if you will not accept that my loud body language makes up for what I cannot seem to express in the sound I am rapidly losing, then I will no longer try to come to your events, for there is no purpose for me to come. It is little better than seeing an old movie of you with the sound almost muted. I love you, but I cannot pretend any more that I can hear.
Sincerely in CHRIST,
Kiwi

Saturday, July 11, 2015

Glory To GOD

You might not know this, but I am completely deaf on one side, and on my other side, I am losing my hearing. And I will admit, I hate being hard of hearing sometimes. I'll just say that straight up. I'm tired of struggling to hear people, I'm tired of having to explain, and I'm just tired of trying to hear. It's truly exhausting. Am I ashamed of being hard of hearing? Well, no. But I'm just plain tired of the struggle. It gets old.

But look at these verses:

Psalm 139:13-16;
 "For YOU formed my inward parts;
YOU wove me in my mother’s womb.14  I will give thanks to YOU, for I am fearfully and wonderfully made;
Wonderful are YOUR works,
And my soul knows it very well.
15 My frame was not hidden from YOU,
When I was made in secret,
And skillfully wrought in the depths of the earth;16
YOUR eyes have seen my unformed substance;
And in YOUR book were all written
The days that were ordained for me,
When as yet there was not one of them.(NASB)"

John 9:1-3; "As HE passed by, HE saw a man blind from birth. 2 And HIS disciples asked HIM, “Rabbi, who sinned, this man or his parents, that he would be born blind? 3 JESUS answered, “It was neither that this man sinned, nor his parents; but it was so that the works of GOD might be displayed in him.(NASB)"

1 Corinthians 1:26-28; "For consider your calling, brethren, that there were not many wise according to the flesh, not many mighty, not many noble; 27 but GOD has chosen the foolish things of the world to shame the wise, and GOD has chosen the weak things of the world to shame the things which are strong,28 and the base things of the world and the despised GOD has chosen, the things that are not, so that HE may nullify the things that are. (NASB)"


2 Corinthians 12:9; " But HE said to me, “MY grace is sufficient for you, for MY power is
made perfect in weakness.” Therefore I will boast all the more gladly of my weaknesses, so that the power of CHRIST may rest upon me."
~~~
Did you catch that? HE MADE ME. This is not a deistic view of human creation, where GOD set the world in motion and human birth is just a common natural process. HE MADE ME. HE FORMED me. I was MADE this way with a purpose. I was "skillfully wrought." Not a mistake, not an accident, but created purposefully by a perfect GOD.

Why was I made this way?  It was "so that the works of GOD might be displayed" in me. Because HE chose me to shame the strong and to nullify the things that are by displaying HIS glory through me. My deafness is not about a mistake; it's about a divine and holy purpose set in motion to glorify GOD.

Does this mean that GOD did this solely for my good, like in Jeremiah 29:11? ("For I know the plans I have for you, declares the Lord, plans for welfare and not for evil, to give you a future and a hope." ESV) No, because that was a promise to the Israelites in the Sinaitic covenant. That promise is not valid for Christians. JESUS said in John 16:33b, "In the world you will have tribulation...(ESV)" Not might, WILL. So this is not about GOD doing something for me to make my life easier. Believe me, it's not easier.

This is solely for the glory of GOD, so that what HE does through me can only be contributed to HIM, for HIS glory and HIS honor. HE made me hard of hearing so that when I serve HIM and others see, they will realize and understand that it is not through my hearing, my ability that I do things. It is so that they realize that it is GOD who is working, and not me, and give glory, honor and praise to HIM. I am Deaf/HOH solely for the glory of GOD, and I am thankful.

Why am I thankful? Because my struggles will not be wasted in meaningless despair. They will be used to glorify GOD and honor HIM. So I am not cursed with a disability, but blessed with an opportunity to glorify GOD, even though it is hard.